The past three days have just flown by. I feel really good, so I've been doing more, worked Wed. & Thurs. afternoons. Taylor & I got out this afternoon and went to Walmart. Just two more days and I'm going back in for round number 4. Doesn't seem like I've had much time between rounds this time, but most of it I didn't really feel good.

This round we are hoping for a quick admission. Don't want to spend 7 hours in the admissions office this time.

Have a great weekend.
Lori

It was another LONG day in KC. I had a blood draw at 12:00 to type my blood. It was 3:30 before they started administering the blood. A 3 and half hour wait!!!!! Nothing is quick, I might as well resign myself to that fact. It was 9:30 when I got home last night. I do feel better today. Thanks for all of the thoughts and prayers.
Lori

Hi,
Ok - the good news white blood count and platelets are up. Don't even remember the numbers right now. Too much going through my head. Seems hemoglobin is low. If I don't get a blood transfusion, my recovery could take a long time and delay my next treatment. So mom & dad are taking me to kc tomorrow for a blood transfusion. NOT what I want, but what can I do??? All done outpatient, so I won't be admitted. I guess that is good. minimally.
Lori

Hope everyone is as glad to see the sun as I am. Even though it is still a little cold outside, the brightness still helps. I had another blood draw yesterday. Not good news. My white count is .4 --- way down. Guess I won't be going anywhere this weekend. Will try again on Monday to see if it increases. I woke up this morning with severe bone pain, a sign my shot of neulasta was working. Hopefully my bone marrow is really busy making white blood cells and platelets, the two things I'm low on. The dr. said I should just be careful about cutting myself or with bruises because of the low platelet count. Since I don't do anything, it shouldn't be a problem.

Enjoy your weekend.
I'll let you know the results of Monday's blood draw.
Lori

4 days post chemo and my temp is staying below 99 degrees. YEAH! Tomorrow will be the defining moment however. Day 5 is when my temp spiked last time. I was able to stay in bed all night last night. Tossed a little bit, but able to go right back to sleep.
Not much else to share, a pretty boring existence right now. BUT THAT'S OK!!!!
Lori

Hi. Today was a better day. I actually felt more normal again. Even sooner than the last two treatments. Went in for a blood draw. Numbers are low- white count 3.0, but the good news is that's better than 3 days out for the previous two times. I forgot to take anything to put on my head when I went in to the hospital (I do my blood draws at stormont). Decided I didn't care, my chauffeur Drew asked if I wanted to go back, I said no. So I am being really careful in public places and using a mask. If I didn't look a sight. One lady in the waiting room asked me if I had cancer. Told her yes, she said I had good color. If you can call a two toned bald lady having good color, I guess that's OK. Felt good enough to cook a casserole for dinner tonight. I was just too tired to clean up. I have good help though. Both Monte and Taylor pitched in.

Thanks for listening to the exciting as well as the mundane.
Lori

Hi, everybody. Thanks for putting up with my sporadic writing. Sometimes it's just to hard to set in front of the computer and write.

Sunday was hurry up & wait. Again. (does it seem like I'm doing a lot more complaining now?) Monte stayed Sat night, we left the hospital about 3. (not without roadblocks from the nurse from HELL Judy) More about her later. Stopped at Kmart for 2 prescriptions. I just can't get comfortable at home either. Can't take too many pills. So I slept for 4 hours, up for 3, slept for about 3 more.

Time to go to KC for my $4,000 shot. Did you know the reason I have to go to KC is because a Dr. from Topeka won't take orders from at Dr. from KC. Can it get any worse?????


Here's to a brighter and more comfortable tomorrow.
Lori

Saturday was long and boring. Monte came up at dinner time and spent the night. I am done with chemo, just waiting on the extra medicine that protects my bladder. They say I should be done by 5:00! Yes!

Friday has been a lazy day. Spent most of the morning dozing. I guess that's better than crying. Monte's sisters visited this afternoon, as well as my Mom & Dad. Good to have company, makes the day pass by faster. Drs. say they are going to work it out so that I can get out of the hospital Sunday evening. Keep your fingers crossed it works out. Just two more days, keep telling myself that it's only two more days. Thanks for all of your thoughts and prayers. I do want you to know that I read all of the comments that are left. I really appreciate them.

Happy thoughts from here on out.
Lori

Today, I can't stop crying. Missing all of you guys, feeling alone and overwhelmed by everything that is happening. I asked for extra meds, hope the tears stop soon.
Thanks for all of your thoughts and prayers.
Lori

Hi everyone, two days down, four to go. Wednesday was a lazy day. All I wanted to do was sleep. Every time I started something, I ended up dozing. Mom & Dad came down for a few hours in the afternoon. I did take a walk in the morning. And by evening the nurses found a trace of blood in my urine. Had to stop one of my chemos, set me back about 2 hours until they tested my urine and found it to be clear. Today, a protein in my blood is low. So... I get a new IV to replace that protein.

Let you know more later.
Lori

Tuesday was a really good day. I got to sleep most of the night. Not too many interruptions. I took a nap, took a walk, watched a movie, read some. I had two visitors, Steve, Taylor's club softball coach, came to see me at about 11:00. We had a nice talk. Also my friend from high school, Vicki, stopped by after dinner, it was really great to visit with her too. Needless to say, the day went by fast, I'm feeling good. We'll see what Wednesday brings.
Lori

I'm finally in the hospital room! We left the house at 6:30 this morning, we were done in the doctor's office by 9:35. We went for coffee and read for a while, then had an early lunch because they told us it would be a while before a room would be ready. We got to the hospital at 12:15. Admitting told us it would be 3:00. Finally at 6:20 they checked me in and I got to the room at about 7:00. Talk about a long day. No comfortable chairs. Anyway, I'm here now but it may be midnight before I get hooked up to the chemo. Wish me luck everybody. I'll write more tomorrow.
Lori

I know it's been a while since I posted, but not much new has been happening. I do want to thank everybody who attended the benefit last night how thankful I am that you are in my life. It means so much that you would take time out of your busy schedules to spend some time (& money) with me! Thank you! Thank you!

Also, it's time for round three! I will leave Topeka bright & early Monday morning to go to KC for bloodwork and a Dr. visit. If I'm healthy enough, I'll be admitted to the hospital for my 3rd round of chemo. Once this round is complete, I'll be half way done. Yeah.

I'll keep you posted through my hospital stay.

Lori

Hi Everyone!
Getting out today, Yeah!


My friend Sheryl has been really busy organizing a benefit for me. I would really like for you all to come so I can thank you for everything that you have done for me.

Here's the info:

Oct 11th 4-7 PM
Fairlawn Plaza Shopping Center Parking Lot
Behind the bank

There will be BBQ and a Silent Auction/Raffle
Donations are still being sought
They can be dropped off at Cards 'n Such

There is still tons to do, so if you would like to help Sheryl,
Please call her
H-765-3902
W-765-3349
C-256-3553 Probably the best way to get a hold of her this weekend


Thanks in advance for all you guys can do for this!
Love you lots!
Lori

Hey Everyone!
Since I posted last on Sunday, a lot has happened. Monday eve, my temp went up to 100.9. I called KU med, got their answering service, never heard a thing from them. By Tues morning my fever was 101.3. When I called KU med again, I got a call right back from Dr. Doolittle's nurse. Got mom & dad up early, kept Taylor home from school and we all headed to KC. Sat & waited for 4 hours before I saw anyone, but finally got put on some IV antibiotics. They admitted me to the hospital Tues. eve. More IV meds. Don't know for sure what is going to happen.
By Wed. morning, I had seen lots of Drs., heard anything from hours to days that I'll be here. Bummer. Need more meds.

Wed afternoon the powers that be decided my hemoglobin was too low. So..... I got some blood. Never had that happen before. I'm a little nervous, need more meds.

Blood transfusion went fine, I got 2 units.

Now it's Thurs. morning early, I slept about 7 hours. Nurse just informed me that my white count is 7.9, very good, hemoglobin is 9.1, also very good.
Maybe they'll let me out today.
Wish me luck!
Lori